Hydrocephalus awareness seems to be making some headway. In an article that was posted on Gabrielslife website http://blogs.gabrielslife.org/blog/2008/01/16/hillary-clinton-dicusses-hydrocephalus-in-presidential-campaign

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Presidential nominee, Hillary Clinton talked briefly about hydrocephalus. This was due to the fact that back in 2004, Shannon Mallozzi, mother of Isabella, approached Hillary Clinton. What followed was a conversation where Clinton stated she would pledge her personal support. As well, Clinton suggested that her office would help lobby to fund federal research into the disease. Although nothing has been done yet, the fact that Hillary Clinton took the time to talk to a person- a mother helps illustrate that just like Annie, we need to take control of our lives. Currently, the government does not keep records of individuals diagnosed with hydrocephalus. Yet this disability is real and it affects a lot more people than we might think. Here are some interesting facts about hydrocephalus, http://nhfonline.org/info.php?id=fact

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Annette Perez’s book gives the reader the ability to connect to a loveable and realistic character. At the same time, Shannon Mallozzi and her daughter, Isabella, emphasize the fact that there are families out there that are dealing with this disability. What’s surprising is the fact that since this disease affects so many people, there should be more resources available and there should definitely be more awareness. Annette Perez’s book is helping; stories such as the Mallozzi’s are also helping (along with this inspirational video clip). http://www.thehillaryiknow.com/ There is so much more that can be done… only time will tell. If Hillary Clinton were to become our next President, would she remember her visit with Mallozzi? Even more importantly, would she act on her pledge to promote hydrocephalus support?

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